Resources

Resources

Pam Resources Page 1

pediatrician

Dr. Delphis Richardson always had the right answer. He never cut me short on an office visit no matter how many and varied or repetitive questions I asked. He was the one who sent us for an MRI immediately when I brought James in for a persistent head tilt at 9 months old, after two previous doctors had patronized this new mother and sent us home with Motrin for a stiff neck. He is the first reason James is here today. It was a tearful visit this summer when we had our last appointment with Doctor Richardson. He retired in July, 2017.

Recommended by friends:

Developemental Pediatrician: Dr. Kessler  

Developmental Psychologist: Dr. Amanda Wood

 

neurosurgeon

Dr. Peter Sun, we were told in the beginning, has performed so many miracles in the O.R that we just expect it now. James is living proof of that. When even St. Jude threw their hands up, Dr. Sun said he could get at least 90% of the tumor, maybe all of it. If you are told that your child’s problem is inoperable, check with Dr. Sun first, then you will know for sure. Here’s a great video from Dr. Sun.

Oncologist

Dr. Michael Graham knows when you’re waiting by the phone for MRI results. Compassion and patience inform years of experience. You understand that he is on your side. If you are faced with an oncology – related decision it’s important to know that all hospitals have access to the same menu of treatment protocols. It is not the case that one hospital can give you a treatment that another can’t, it’s more a matter of which one doctors believe has the best chance to work. Dr. Graham, as well as the International experts at Oakland Children’s hospital, are worth contacting for second opinions no matter where you live. You can always have the protocol they recommend carried out closer to home. Here’s a video peek of Dr. Graham.

OCH

During the 5 years James fought brain cancer I came to learn who was the best of the best in pediatric medicine. There were many others who made a difference, but I thought these are the categories that would be most searched for. If you need one of these, you will come to meet the others. The Oakland, CA docs mentioned here are all from Oakland Children’s Hospital. They are consistently brilliant, compassionate, professional and patient. I think for these reasons they achieve things that other hospitals don’t. They kept going when everyone else gave up. If you have a problem and no one else can help, this is the real A-Team.

Ophthalmologist

 Dr. Oneil has achieved amazing results for James over multiple surgeries. He is a top doctor in the Phoenix are. Office visits can be an ordeal, with a minimum one hour delay as a general rule, months out to book an appointment, and not the warmest front desk experience. But if you have a child with special needs the vast majority of the time you need a pediatric eye doctor in your Rolodex and he is very good. Dr. O’Neil sees a lot of special needs kids. You may or may not have to compromise on bedside manner but you can trust that your child’s eyes are in good hands.

Recommended by friends:

Dr. Brandon Cassidy

AdditionalResources

Dr. PandyaAmazing Orthopedic Surgeon if you’re local and need a second opinion.

The National Association for Rare Disorders: This came highly recommended by trusted professionals.

Special Education and Special Needs Law in Phoenix, AZ: Unfortunately, once you make it past the hospital stage you will probably have to deal with special education. This is one fight that never ends. In AZ these two lawyers are among the best and most caring:

Lori Bird: When you need an advocate to attend IEP meetings with you.

*Lori is no longer in private practice but Susan Marks is an excellent alternative.

Kirsch-Goodwin & Kirsch, PLLC: When you need litigation.

Wrights Law: Good resource for special needs law and other factual things. I can’t stress enough that you need to inform yourself accurately of your and your child’s rights, the school districts will not, no matter how nice they may seem to be.

Also…
It’s a good idea to search for groups on Facebook to connect with other parents in similar situations. Seek out other parents at your school. You don’t need to have them over for dinner but you do need to talk. You need to know each other. These Facebook groups are often private and restricted to families, barring school district employees. When your opponent is the school district, they aren’t going to tell you who your friends are. And you need friends. Not so much for emotional support, though that is there if you need it, but to share information that you wouldn’t know otherwise.